The Fly in the Windex
(I meant this entry to be funny but it got away from me somewhere and turned out all sappy)

Momentum

Our county's Early Intervention department called this morning. Initial intake assessment will be done on August 8th at 9 am. The two-hour one, the important one, will probably be done the next day.

FYI to those of y'all using this blog to gauge your own child and the appropriate level of concern: After listening to our worries and the extent of Noah's vocabulary, they originally told us the big evaluation probably couldn't be done until the end of August or even the beginning of September. But once we told them about how Noah loses words (plane/light/fan all turning back into "nah" after awhile, for example, while other words vanish all together), they ever-so-suddenly bumped him up to the front of the line and gave us the August 9th slot.

I have no idea what that means, if anything. And I don't really have much else to say today. I read the new Harry Potter. I got my hair cut.  We bought some ice cream cones and ate them while Noah splashed in a fountain.

Jason turned to me and said, "You know what? I'm not worried about him anymore. I think he's going to be just fine."

"I agree," I said. "I'm not even thinking about it much anymore."

Noah_fountain

But still. It felt really, really great to get that phone call this morning.

Comments

Maria

Yeah for getting the phone call and the early test date.

Haley-O

That's great that you got an earlier test date! It's so soon! And, I'm sure it will alleviate a lot of your worries. I love that picture of Noah -- his hair is beautiful!!

imstell

Amy - Early intervention typically doesn't "do" summers because they are tied into the school system. Noah is going to be just fine. You are going to be just fine. And your family is going to be just fine also. They will come out and play with him and sing songs and play with his toys and ask you questions and it will all be good. It's really good to know. And if Noah ends up as one of their kids... well, your case worker will be just like one of the family. Ask me how I know... ;-)

Karla

Tis the season for haircuts? I got mine cut last weekend too and totally wanted Nicole Richie inspired side-swept bangs, but chickened out at the last minute.
Your look beautiful darlin'.

And your son, pinchably cute. But not that I would pinch him because strangers pinching kids is totally weird.

bananie

i am needing a haircut badly badly badly. i succumbed to the "i'm broke, i'll let my partner cut my hair" temptation earlier this year, and it is always a downward spiral from there.

i liked my haircut at first until my butch trainer called me a butch. and here i thought i had a pixie cut.

still broke. hair still bad. maybe i should put a paypal donation thingee on my website?

btw, i love noah's little crocs. they're perfect. and i've been sending my best, vocabulary-rich thoughts your way all week.

Jennie

Your hair looks incredible. So does Noah's.

lynn

First off, love Noah's shoes, I bought my son a pair just because it was fun to buy him something cute and different. I don't get a lot of those opportunities having a boy, (and he loves them and wants them in another color).
Second, you look beautiful with your new do!
Third, yeah for the appointment where you will find out that he is going to be just fine and is already so cute he could possibly be eaten by bears. :)

Kay

Oh my gosh, I LOVE the new haircut! So stylish and manageable! I wish I could get my hair to look like that...

jodi

yeah!!!!!!!!!It's going to be fine. I have a lot of experience with this program and they are fabulous.

alison

He is going to be fine. Each day it will get a little easier to swallow. I just don't understand how you two could eat ice cream cones while Noah played in the fountain. My kids would be like, screw the fountain, where's our ice cream? :)

andrea

Great hair. I love that they cut the bangs with ponytails in mind that is exactly what I need to suggest next time I get mine done.

So glad you got the call about the appointment. Whatever the outcome Noah will truly be just fine, perfect even.

Tonya

You're absolutely right. Noah will be ok (is ok) and any help he needs is right there and available and free- you said it was free, right?. Worry not! With looks like that, the kid is unstoppable.

p.s. love the new hair. also, i just got my hair cut in a shockingly similar fashion. all i can say is, thank god the blow out lasts for a couple of days, thus prolonging having to actually style it myself.

Pickles & Dimes

Taking action always make you feel better. (I'm talking about Noah, not your hair, although the statement works for that too, I guess.) :)

Good luck to you and your family. Noah is so adorable!

Bethany

He's so precious Amy, Noah will be fine as long as you and Jason are fine. And you will be. Because you went through hell and high water to have this amazing child. I have never known...well you know, "internet known" a more dedicated and strong mother. I just hope that I can be a fraction of that. I wish you all the well wishes in the world for your upcoming assessment!

Julie R

Your new 'do rocks almost as hard as Noah's tiny crocs. Seriously? Can there be anything cuter than tiny crocs? (Answer: Yes! Side sweepy bangs for the pony-tail minded!)

Peggasus

He will be fine. This may even be a good thing, in the long run.

After testing in first grade, my son was tapped (and not in a good way) for a highly-touted program called Reading Recovery. After I got done weeping and wailing and gnashing my teeth (why my boy? I read to this kid in utero! we have books all over the place! a library, even! I read to him every night!), we thought it was the most fortuitous thing that could have happened. He got one-one-one time with a special teacher 5 days a week for an entire semester, and by the end of the program he was reading at a THIRD GRADE level. He is now going to be a sophomore in high school and is an honor roll student. Hooray for Early Intervention!

nonsoccermom

You are absolutely right, Noah will be just fine. Great, in fact. Good luck with everything, keep us posted.

Helen

Me again, we just cane back from Isaac's parent teacher eval.18 months ago ( aged 4) he could say 4 words. Dad, beh ( seth) baba ( mama) and bull ( milk) he hid from everyone and everything, he held his breath until he passed out at least 5 times a day because he was afraid ( someone would talk to him, I would move away from him too quickly) Today we heard how he is the most popular child in his class ( mainstream school)he reads at an above average for his year ( and he is 10 months younger than most of the other children)She is thrilled with him, she almost cried at the thought that he won't be with her next year. I can't help but think how he was SUCH an oddball when he began nursery class ( kindie)we thought he would never be able to funtion like other children. What a difference in 18 months, he still cannot speak to people he doesn't know, finds it incredibly hard to speak in a formal setting but he is a star. He's getting there.
I am thrilled that Noah is getting seen so quickly and even more thrilled that Jason can look at him and know that there is nothing to worry about. Because there really isn't you know.

gretchen

EI is totally fine!! First time poster very long time reader. I found your link a looong time ago on a blog that shut down, did you read Karen @ The NO? She had you as a link. We have a daughter from China who's 13 days younger than Noah, she was born 10/13/05 (yes, I know totally different story, but please read on...) We've been working to get her to speak for the past 7 months. She said basic words when we first "met" her and then she lost them within a week. With EI's help we're getting those words and many more ( god help me) back. Patience and a lot of mommy love will go far with your exremely handsome son and next time you're in Philly, let me know...

Lori

Glad to hear that you all are getting in sooner rather than later. You all are on top of it...he's a GREAT kid, and you'll be shocked at how much progress he makes once you get therapy started!! :)

Wacky Mommy

Darn it -- I just deleted my comment by accident.

Your hair looks great, girl. (That was the most important part of the previous comment.)

Noah's speech will be just fine, don't you worry. My daughter has gotten so much from the speech language people she's worked with. It takes awhile, just hang in.

Kristine

A little trick I've learned going down the early intervention road; always make it sound worse than it really is. Never make excuses or try and make things sound better.

Better to get more services than he needs, than less.

Julianna

You know? I have faith in you all and especially in Noah-- he'll be fine! I decree it!

Your new haircut is awesome. I love your bangs. I wish I could have bangs! I love bangs like that so much but I have two really monster cowlicks and I have no idea how to overcome that.

Starbuck

Whatever the reason, getting in sooner is a good thing. We all know how stressful waiting can be.

I love your hair!! I just may have to print it and get my hair cut the exact.same.way. After all, imitation is the sincerest form of flattery. And since I live 3000 miles away I probably won't run into you somewhere and be all embarrassed.

Deanna

Awesome. And if you're like me, you're split in what you want for an outcome: If he's accepted into their program, that's great, because he'll get the help he needs. If he's not accepted, that's great, because it means he doesn't need it. We went through that with our son and physical therapy. Our one-year eval is coming up next week, so we're having the same mixed feelings.

HollowSquirrel

I don't want this to come out the wrong way, but that's one of those haircuts that if it were me, I'd be smackin' myself for not having YEARS ago. You look beautiful. NOT that you looked bad before, but when you get one that's SO right, you know? Am I just digging a hole here? LOVE IT.

Continued good thoughts for Noah. I'm happy to hear you're getting in soon for an appointment so if there is intervening to be had, it's about as quick as possible. He's so smart and lovely; they probably just want to get their hands on him ASAP!

Shelley

Love the new hair, super cute. Jason is right, Noah is going to be just fine. I just need to know when he got SO big! August 8th is my birfday so I'll use my wish that you guys have a great first appointment!

Abra Leah

SO glad they can come earlier than expected! You know you can call me any time!!! :)

Emmie (Better Make It A Double)

I'm happy for you - for your perspective and the fact that you got the call. I know losing words can be a "red flag" in some cases, but sometimes, that just happens too. Hell, I lose words sometimes, and so do my kids if we don't have exposure to them for a while. neither of them remembered "snowman" the other day, for example, when we read a library book about them. Noah is going to be just fine (and there are more than a few ways to be "just fine").

Kelliqua

The P.E.I.D. program really is terrific. If he has to go into it, they play and sing and spend one on one time (usually at your home) with him. He will be getting speech therapy without knowing it. He'll just think he has the perfect personal playmate.

Also, don't forget that a speech impediment is just that. A lazy tongue, underdeveloped muscles, etc. I mean, children who stutter or have lisps don't usually have memory or learning problems, just speech problems.

Let us know about the ear/hearing evaluation.(With a specialist, right?) The free programs confirmed that yes, my son had a speech impediment, but weren't extensive enough to find the source of the problem - his hearing. The otologist could tell within minutes of us sitting in that soundproof booth.

Linda

The hair looks great. Hang in there with your son. The most important things is love, and you all have that. Linda

Tam.

Amy,

Now THOSE, are some awesome bangs! And ya know what? Everything will be just fine. :)

QofD

Noah is not only going to be just fine, you are too. Maybe he's hit a developmental bump in the road. Perhaps it is more serious, but that doesn't necessarily mean "bad". It might just mean "different" and "more interesting".

Best wishes to you.

Kyla

KayTar lost words, too. It was one of the key worries. Finally, once she learned sign language, it seemed to firm them up and and we haven't had the same issues again. All we can figure is that she needed to attach and action picture to the verbal sounds for her brain to really absorb it. But she has, and it is good.

Mouse

I keep wanting to comment on these posts, but find I don't know where to start and everything feels inadequate. I know my wife has emailed you, so you've heard some of our family's story. We're looking at a minimum of sensory processing problems plus speech delay and a maximum of some level of autism. Both Trillian and I cried at the very beginning, but once we'd had time to let the idea sink in, we realized that he'll be fine, not exactly-like-other-children fine, but just-as-he-should-be fine. It doesn't mean we won't find the appropriate interventions for him, just that we wouldn't want him any other way.

Rebecca

I'm not sure if this will help but I didn't learn how to speak until I was 4 years old (come to think of it, that would make a great blog post!). I had to attend a special school and had speech therapists until I was about 8 years old. I now work in Public Relations and Marketing and I used to be a journalist. I think learning to talk later in life didn't set me back, it just made me different. And Noah will be just fine. He'll learn to speak and then you'll wish he'd just be quiet for one moment, just one!

Tirzah

I'm glad you guys have calmed down about it. You're doing what you know best... Love the picture!

Katie Kat

Awwwww, punkin (I just felt the need to call you that... don't ask). I know the kiddo thing is scary as hell. He's not even my kid and I'm stressing right along with you (is that like when women who spend a lot of time together start cycling together? And no, I don't mean on bicycles).

Anyway, denial is always a good coping mechanism -- along with alcohol. Well, it's what's worked for my dysfunctional unit (i.e., FAMILY) for years, so I go with it. I do SO want to give you a hug. :)

And your hair is FAB-U-LOUS! At least you'll look good for all those appointments wherein they will assess Noah and say "What the hell are you doing here? He's FINE!" That's my wish, anyhow.

Kristabella

Ice cream always makes it all better.

Glad the appointment is on the horizon.

And DAMN! That kid is so adorable!

mcewen

Well done you! I wish I had been as calm when we were experiencing something similar.
Best wishes

kerrianne

Noah has little kiddo crocs! Awesome.

Alissa

I just wanted to warn you that (if things go like they're going for us), you'll have these to evaluations... then wait a month or more... waiting for your speech therapist, etc to contact you and then when he/she DOES call... they set up and appt to ... do an evaluation... but they can't fit you in for two weeks...

LVGurl

Wanted to say HI and that I'm hooked! I've read your blog on and off for about a year now... I never commented because it would be like a fart in a windstorm with your popularity! (Gawd, I'm using cliches my father uses. Help me!)

But reading all what you're going through with Noah, I wanted to say HI, finally, and I hope for the best possible outcome for you all. Whatever that may be. Best wishes and take care!

Christine

I wouldn't be too worried about him either. He seems (from the website) to be such a great kid! Yay for the early test date and here's hoping for only good things.

I will say what I am worried about: those crocs. Man, even on a kid as gorgeous as yours I cannot handle the ugly of the croc. Sorry lovers of them! I get it, comfort. But I can't. I'm sorry.

mariana perri

I know a stranger can hardly bring you confidence and comfort... but, for all that matters I think Noah is absolutely adorable and is just taking his time!
It only spoke my first understandable word at 3 years of age... back then autism was not even in the books... hence, doctors simply did not worry about it... trust me, I now speak like there is no tomorrow!lol
But, in any case... there is a very famous scrapbooker called Ali Edwards whose son is an autist and she has become very knowledgeable on this subject... if you want to connect with her, this is her blog: http://aliedwards.typepad.com/_a_/

Wishing you all the best!
Mariana

BOSSY

Can we talk about your haircut? Bossy wants pictures.

sandy

I have been reading your blog for several months. I have never left a comment, but feel the need to now. As I read about your journey with Noah, it takes me back 8 years, when I went through the exact same thing with my son. He talked late, lost words--your story is so similar to mine. My son is almost 10 now and I am happy to report that he is fine. Please e-mail me and I will share some of our experiences with you….

heidi

gonna be harder to fight off those bears in sandals but i'm sure he'll get it done. so cute.

Hiya

I am holding good thoughts for all of you. We're so fortunate to have EI. Used to be that you had to wait until a child entered the school system to get any help. I trained as an Early Interventionist, but stayed in teaching because it's my first love. In my early years of teaching I kept wishing for something like EI to come along. ("If only we could catch these children and their parents early! What a difference it would make!")

P.S. Your haircut is beautiful! It really suits you. SO pretty.

honestyrain

my son, now six and perfectly normal normal normal, lost words all the time. like ALL the time. at noah's age and younger. when he was 9 months old i SWEAR to you he had 8-10 words and then poof they disappeared and he had precious few for the next i don't know how long. it was distressing. we thought somthing must be terribly wrong. the thing is in canada (where i live) they are not as apt to jump in for early intervention. there is not the same level of panic or concern. there's more of a let's wait and see with most kids because with most kids it's nothing serious and works itself out. with my son it did just that.

we grew to understand that when jacob had somthing else going on developmentally he started to slack in other areas. like if he was getting really good at physical accomplishments he would talk less or the other way around.

i really wouldn't worry if i were you. i'm sure he's fine.

Mary

Oh my God, I must be cracking up. Where is a picture of your new haircut? I've looked everywhere and don't see it. Or do I need an amalah secret decoder ring to get to the picture?

Mary

Duh. I'm a dumbass. I just saw the link, right there in dark red where it says "my hair cut." I'm going to shut up now.

Mediocre Housewife

We have the same haircut! I got it done with ponytails in mind, too. :)

Glad to hear that Noah's assessment is coming up quickly. It'll be a load off your mind to have a clear cut idea of what steps to take next. :)

maxsmom

I think I'm the only one on the planet who hasn't read your blog, so I'm not sure where you are. My son is 2.5 and has been dx with Childhood Apraxia of Speech (the official title) he was dx by a neurologist and his speech therapist. He loses words too. He has been in Early Intervention for a year now and has gotten a ton of speech. You need to request PROMPT therapy , a special therapy for Apraxia. Also check out CASANA and Cherab those are the big apraxia orgs. Marilyn Agin who wrote the book The Late Talker (I highly recommend) is in NYC, where I am and I was fortunate enough to meet her at a meeting. She charges $2500 for the first session, no insurance. The best thing to do is get as much therapy as possible as soon as possible, go through your insurance too. We have good ins. so we do both. Also, Apraxia rarely shows up by itself, make sure he gets an OT eval PT eval and some kind of special instruction, ask for it all. if you want to email me you can. Good luck

Laura

Glad you guys have decided to not freak the fuck out anymore. He'll be fine...will be talking a storm up soon enough!

Those baby-Crocks are 'effin adorable.

Robin

Thinking of you, Jason and Noah. Remembering the worry leading up to our sons evaluations, hoping we were just neurotic, over analyzing first time parents, hoping we were right on our hunches so our son could get the intervention he needed. Noah, and you and Jason will all be ok no matter which roads this all leads you down.

Bonnie

Don't get worked up about ECI. Jack had that recommended when he was slow on development for sitting up and verbally. We did it for a while, but it's hard not to let it make you paranoid. Then neurologist appts and testing, blah, blah, blah. Finally I took him to a cranial sacral therapist who I go to for migraines. Saw a difference after one treatment and after 4 months, he was caught up to the other kids. But those ECI people can sometimes make you freak a bit with all of their testing and jargon.

Miss Britt

Someone gave me this advice lately when I was completely losing my mind:

Remember, this is temporary. No matter what the assessment tells you and what the "treatment" is - it's alllll temporary.

I hope that helps you more than it helped me. :-)

Big Mama's Sister

Hi Amy, I am laughing and weeping all at the same time reading your last post & even the ones before about your son Noah. My sister is Big Mama and she forwarded your blog for me to read because I have a 2 year old daughter Sarah and we have been journeying down the same road you & Noah are on. I absolutely love everything you say and how you can explain all the ways it makes you feel better than I could even explain to myself! Sarah sounds so much like Noah, she only says a few "words" and has sensory issues, but we have been in ECI therapy for 6 months now...since she was 18 months old & I really have seen a ton of improvement in her. Her speech is still not there, but the sensory issues are getting soooooooo much better I can't even believe & supposedly that should help speech to follow. We do have an appt. scheduled with a developemental pediatrician for Sept., and of course I'm scared to death it's going to be an Autism diagnosis, but reading your blog from yesterday and the other comments, just makes me realize how much I love her and all of her uniqueness no matter what label she does or doesn't get.

I think you're doing awesome with Noah & I promise you will see so much improvement with ECI therapy!! Thank you for sharing from your heart & know that it is touching a lot of people in the same situation.

jenn

my first comment to you - found you through the glorious Helen. I have 3 boys on the spectrum - including a non-verbal 3 yr old diagnosed with autism about 1 month ago. It's ok to feel that anxiety and worry in the pit of your stomach. It's ok to cry, and it's ok to acknowledge fear of what the future holds. After that, we sit back and marvel at our fantastically quirky kids. I never in a million years imagined myself - ME - a mother to 'special needs' kids - and yet here I am, with 3 charming delightful, and intelligent and dare I say gorgeous boys (and they ARE gorgeous) who have been categorised and labeled all in the name of getting them help. Help to be 'normal'. They are without a doubt the most wonderful children. My oldest sons kindergarten teacher so dreadfully upset that he is moving to grade 1 and she'll no longer have this quirky boy in her classroom who doesn't share crayons and markers, insists on labeling every piece of work with "McQueen" and is the sole child to get and laugh at the teachers jokes. They are a source of constant joy, and it was because of them that I began blogging in the first place. Now that they've been in therapy and have learned the appropriate responses and how to function in our world, I have noticed that my blogging is much less frequent and not nearly as entertaining as it was when they were just being their natural quirky selves.
People fear the great ASD diagnosis - afraid for what that means as a loss for their children - nobody ever seems to see what they gain from it.
Immeasurable joy. Love. Patience. Acceptance.
My next door neighbour called my son "one of the nicest 6 yr olds I've ever met".
That's hardly a 'disability' then, eh? These boys make me proud. I love them so much.

Deb

Don't even sweat it! My oldest didnt even talk 1 word till he was almost 4 and no sentences till about 5... now he wont shut up! Yes they will sing songs, read to him, and some times he will cry and get frustrated, but they teach him how to turn that frustration around and use it to make more verbal sounds. It will all be fine.

Stacy

I've been thinking of y'all. I worked in child development for some years and am a teacher now and just feel that it's worth echoing what others have said. Namely, that you are getting help and your child has you.....no small champion in his corner.

Speech/language issues are manageable and you will likely see big improvements quickly. And one day your child will talk so much you will wish for silence. And then you will laugh and remember how anxious this once made you.

But for now, it's okay to worry because you're a mama and that's what mamas do.

Paula

Delerking here! A year and a half ago I too was dealing with issues about my daughters speach. It wasn't that she was loosing words, it was that she hardly said ten words at all. The process of the testing is rough on us as parents. The unknown was almost more than I could take. Getting your son evaluated and enrolled into an early on program is the best thing you can do for him. It won't always be a pleasent road. My daughter started out in what is calld the S.L.I.M. program for kids with sensory issues. Every kid in the class but mine was autistic and at that time we didn't know if she was on the spetrum or not. Half way thru the year my daughter moved to another group and continued with speach therapy,OT/PT and now, a year later, my daugher won't shut up. Surround yourself with support and do all kinds of research to arm yourself because you know your child best. The therapists know a lot, but they don't know your son like you do. Take advantage of all the services that will be offered to you. I allowed myself some time to grieve when I got my daughter evaluated. I saw all my dreams for her vanish because I was worried about autism and what a sensory disorder would mean for her. My daughter has learned how to deal with her sensory issues. She will never be 'cured' but she continues to learn how to cope with them. I wish you the best with your son's evaluation and I will be back to read your posts on how he is progressing.

Stephanie

Your hair looks great, and I love Noah's blonde curls. Reminds my of my little guy's when he was that age. So glad you got the call, and things are moving in the right direction! I'm cheering for you guys, and I know that everything will work out.

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