close
close
close
Mom's Daily Dose
recent posts
close
Mamapop!
recent posts
close
The Advice Smackdown
recent posts
about me
archives
links
twitter
subscribe (rss)
 
mamapop
the advice smackdown
zero to forty
bounce back

« It is too hot to write anything; here, have some pictures | Main | That's Hott »

Assessment

August 09, 2007

I woke up this morning with a weird sickish vibe -- similar to the feeling I get right before flying cross-country. By myself, with four connections.

I had at least three anxiety dreams last night, all of which were about me oversleeping and having to let the evaluation people in while only wearing my underwear. So I woke up at 6 and was dressed and ready and staring at the door by 7.

They came at nine. Two ladies -- one speech pathologist and one special education teacher. They were warm and friendly and lovely. They took one look at Noah and gasped. "He's GORGEOUS!" they gushed. I liked them instantly.

Jason stayed home and we sat on the couch, while I positioned myself best for subtle kicks to his ankle if he got too braggy about Noah's abilities because THIS IS NOT THE TIME FOR THAT. STICK TO THE SCRIPT. ALL IS DIRE AND LOST AND WOE.

They gave Noah a series of puzzles and toys and simple instructions. His Royal Hamness excelled at almost all of them. He looked for praise and smiles and deftly manipulated pennies into a coin slot. He didn't understand when they asked him to find a matching car, because lady, you've got a car right there in your hand, so why would I waste my time finding another one? My time is precious, you know. Gimme that acar.

He scored at 20 months for cognition and receptive language. 21 months for fine motor skills. 26 months for social-emotional.

17 months for expressive language and gross motor.

Five months behind.

But not a 25% delay.

I started to quietly freak out. Do I take their word for it? Them, with their checklist and filled-in-bubble-circle worksheet and some random mathematical formula? Do I take him to a private practice? Do I keep pushing?

Do I really need to keep pushing? Fuck. I'm all lost again.

But then they told me they're qualifying Noah for services anyway.

Turns out there's a bit of back door into our early intervention program. A catch-all diagnosis of "atypical development."

Which for Noah means that he excelled at verbal skills before 12 months (babbling early, expressive jargon, etc.) and then slowed down right at 12 months (slow to point, gesture or wave). And then he's been at a near-standstill for about five months now. That's enough to get him in the door and enough to get him all the free help he needs.

"He could just be a late talker," the speech therapist said. "But I'm certainly not going to take that risk. There's no point, when I know we can help him."

"He just needs a little help," the teacher said. "I can't wait to work with him. I'll bring toys, and we'll play and talk and he'll have tons of fun."

(I was practically weeping with gratitude and relief at this point.)

So in a few weeks Noah will begin weekly sessions with the special ed teacher (the speech pathologists are generally reserved for older, more critical-case kids). She'll come to our house once a week, every week, for at least six months. He'll get a free hearing screen in a week or so, and at least three sessions with an occupational therapist to assess the sensory issues and give us techniques for dealing with them. In the fall we can attend a mock-preschool (run by the early intervention program) together, where he can interact with kids who are facing the same issues, where he won't stand out like a sore, silent little thumb.

I'm so overwhelmed at this point I don't even know what else to say. It's a good kind of overwhelmed, because I honestly can't think of a better outcome. Noah is fine. It is not a major delay. And yet he is still going to get amazing and individualized care and he is going to TALK UP A STORM.

Oh, here come the tears again.

I'm so grateful we live here. I'm so grateful our pediatrician didn't hesitate and didn't drag his feet and I'm so grateful that our friends and family supported us in our decision to make a Big Fucking Deal about this.  And I'm so grateful for all of you, dear little internet people, for giving me hope and help and head pats -- and for loving and cheering Noah on as much and as loud and as often as you do.

(The evaluators were extremely impressed by the depth of our knowledge about speech delays, particularly when I told them I'd chucked all of our non-straw sippy cups, and I apologize for taking credit instead of admitting that yeah, the Internet People told me to do that.)

So I guess, now that we're officially through the dark time of questioning and worry, it's my turn to pass on advice and words of wisdom. The first bit of advice is to mix your self-tanner with body lotion, especially around your elbows. And then I would say, for anybody who is worried about their own kid, to just go ahead and make a Big Fucking Deal about it if you have to. Be it a speech delay or SPD or just a creeping worry because your child is not doing X, Y or Z.

It sucks admitting that there's something wrong with your child, but you aren't doing them any favors by denying that there's something wrong.  I would rather be told I am overreacting than find out later that I underreacted. You aren't wasting anyone's time by getting things checked, by calling your state's early intervention program and jumping through the hoops and in the end, even if everything is fine, you will sleep better knowing that you got it checked out. You are not being neurotic.

You are just being a parent, and that's a wonderful, terrifying, amazing thing to be.

Posted at 12:48 PM in Noah, SPD, speech delays | Permalink

Comments

I don't actually know you in real life but I don't think Noah could have found a better mommy.

I'm so happy the evaluation went well.

Posted by: ~*M*~ | August 09, 2007 at 12:55 PM

Again with the crying! This is like the third time this week you have made me Ugly Cry. But it's a good, good thing.

Posted by: Kate | August 09, 2007 at 12:55 PM

So glad for you and Noah. Now, maybe you can sleep better, tonight.

Posted by: Carin | August 09, 2007 at 12:56 PM

so happy for you. This is the best possible outcome.

YAY for state services!

Posted by: Amy H | August 09, 2007 at 12:56 PM

That is sofa king awesome. Yay Noah! Good job, mom&dad.

Just have a private word with the teacher and suggest that she not teach him the word "Why."

I mean, you have your own mental health to consider at some point.

Posted by: norm | August 09, 2007 at 12:56 PM

Non-straw sippy cups??/ Why do we need to switch? I missed that one. I'm taking my son in to his pediatrician today about speech delays.

Posted by: Kris | August 09, 2007 at 01:01 PM

It sounds like it went well, and I'm so happy for you all for that. Also, I always overreact about everything, so I don't think I'll have a problem if any of my future children needs attention. Just ask my husband; he'll heartily concur.

Posted by: Jessie | August 09, 2007 at 01:03 PM

So glad that everything went well & that you are feeling better about all this. Woo!

Posted by: jive turkey | August 09, 2007 at 01:04 PM

Hey, congrats! Just wait, the next portion will include the questions about how much tv you let him watch (not supposed to be any until they're after 2 yrs old and 'fully verbalized') because that is apparently the downfall of all humankind. Including but not limited to baby einstein, barney, etc etc.

But in all fairness (I have a daughter who struggled with speech for over 10 years before we kicked it and I won't go into my bribery story again), once we cut the tv off, we did see remarkable improvement, both in her speech, the decrease in drama/tantrums from her sister, and in my hubby's and my communication.

But oh my goodness gracious, I was starved for the bewb tewb when the deprivation era ended. I'd watch just about anything, regardless of content, plot depth or even english speaking characters!

Posted by: mrs butter b | August 09, 2007 at 01:05 PM

Oh, fantastic. And thank goodness that a) Noah's delay is not severe and b) the program is accepting him nonetheless. I am sure he will, in characteristic Noah fashion, make great strides and impress the pants off of everyone.

Posted by: Sadie | August 09, 2007 at 01:05 PM

Kris - it's a mouth-muscle/tongue-placement thing. The spout sippy cups push their tongues back, while the straws help flex a lot of the muscles needed for speech. So kids with speech delays should only use the straw kind, if possible.

Posted by: Amalah | August 09, 2007 at 01:05 PM

This kind of post should come with some sort of warning for early-pregnancy hormonal women like me *sob*
I'm so glad it all went well, and that the ladies recognised what a wonderful child Noah is!

Posted by: Kathie | August 09, 2007 at 01:07 PM

Hooray! I'm so happy for you and Noah.

Posted by: Mandy | August 09, 2007 at 01:08 PM

So happy to hear that you will get to go ahead with the early intervention program.

Thank you for posting so honestly about all of this, you have definitely helped many of us to keep an eye out for signs of delay and to understand that asking for help is a good thing.

Posted by: andrea | August 09, 2007 at 01:08 PM

Thanks for making me tear up at work.
Such good news, I'm sure that things will all work themselves out perfectly. Good job!

Posted by: Kristin | August 09, 2007 at 01:10 PM

yay for you and Noah and Jason! That teacher sounds awesome. wishing you all the best.

Posted by: chiquita | August 09, 2007 at 01:11 PM

Thank GOD you live where you do and have these awesome helpers available. I may have cried when the woman said: "But I'm certainly not going to take that risk. There's no point, when I know we can help him." Amen. Hugs to you & Jason and extra schmoopy hugs to Noah.

Posted by: HollowSquirrel | August 09, 2007 at 01:12 PM

I'm so happy that you are pleased with the outcome. I think that this will be a truly wonderful opportunity for Noah.

Posted by: emily | August 09, 2007 at 01:13 PM

Good for you for following your mommy instincts and getting the help he needs. My best friend went through the same thing with her son...now she can't get him to stop talking!

I hope all goes well with his therapy. Thank you for sharing your story with us. I'm sure you have helped countless others by doing so.

Posted by: Lori | August 09, 2007 at 01:14 PM

I never really understood that scene where Shirley Maclain flips out in the hospital in Terms of Endearment until I had my son. Now I admire her restraint. You are just doing your job as a good, loving, kick-ass Mom when you rattle cages until someone helps your baby. I am so happy it is turning out so well! Yay Noah!

Posted by: Elizabeth | August 09, 2007 at 01:15 PM

I'm so glad to hear everything's going so well.

Posted by: Leah | August 09, 2007 at 01:16 PM

I shouldn't admit that I just got teary through this entire entry. The other day my husband said, "you know you dont actually KNOW this woman, right?"

Posted by: Tracy | August 09, 2007 at 01:17 PM

Awesome, awesome. Awesome that he isn't really delayed, awesome that he is still going to get the help and awesome that you have warm, fuzzy evaluators who adore Noah already.

Just awesome.

Now save this post for the days down the road when you just want him to STOP talking.

Best of luck.

Posted by: MomSmoo | August 09, 2007 at 01:18 PM

I've got no kids myself, but, you know, having been one for a while, with "sweep it under the rug" type parents, I've got to say 3 cheers for the big fucking deal to stamp out any possibility of future problems. 5 months isn't a lot to catch up, when you consider the alternative waiting it out, to not make a fuss. I'm a fan of fuss.

Posted by: TJ | August 09, 2007 at 01:19 PM

Crying my eyes out in Idaho for your precious, adorable, full of sweetness toddler who will one day say, "Thanks, Mom, for making a big deal."

I've been worried all morning about this as was hoping you had posted an update. Good for you, Amy and Jason, for being on the ball with this.

Sending hugs to the Moroccan Dancer Boy.

Posted by: Missie | August 09, 2007 at 01:20 PM

I'm so happy for you and for Noah! Such excellent news!

I must confess that I haven't read every single comment on your posts about speech delays. I'm not sure if someone has already mentioned this to you or not, but ASHA (http://www.asha.org/default.htm) is a great local resource (the American Speech-Language-Hearing Association). I do freelance work for them on occasion, and they are talented, helpful and all-around amazing people who do good work.

Noah will be talking in no time!

Posted by: Kay | August 09, 2007 at 01:24 PM

All choked up. And I is not a crier. Thrilled for you guys. Everything is going to be amazingly fine. :)

Posted by: Mo | August 09, 2007 at 01:24 PM

What an extraordinary week you have had! I think you need to celebrate it. With something like Ben & Jerry's Pistachio Pistachio.

This is wonderful news. I've been, all along, one of those who thought that it would all click with Noah sooner or later anyway, he's too smart and adorable to never be able to sweet talk the little girls in the sandbox. But I have also understood your fears for him, and your determination to do everything on earth and maybe a few things not on earth to get help for him. How wonderful that you didn't have to fight for it, that it fell right into your lap. I love that lady too!

Oddly at one point in your post you used the word atypical and my brain paused there. Atypical? Aball? Abeah? See what he's done to us?

Posted by: Judy | August 09, 2007 at 01:24 PM

Yay!!!! I am so relieved for you! That is just fantastic news. Can't wait until Noah starts talking up a storm and you record his precious little words for us to hear.

Posted by: Stephanie | August 09, 2007 at 01:30 PM

Yay! I'm very happy for you and the internet's nephew, Noah. And I know what you mean about the compliments; I had to take my son to a surgical specialist when he was about four months old and then for a few follow-up visits, and the surgeon always tells me how gorgeous my son's eyes are. I like that man. (My son, incidentally, is fine and does not need surgery.)

Posted by: Maureen | August 09, 2007 at 01:30 PM

I can't believe with all of our conversations I forgot to tell you about their "catch all diagnosis."

You 100% did the right thing. And I'm so glad it turned out to be really not that bad.

Pretty soon it's going to be Noah yelling at you from upstairs that that is not his right lion. And he and Michael will be having full out conversations about it.

Posted by: jodi | August 09, 2007 at 01:31 PM

Good news! I'm looking forward to the post where you say, "I can't shut this kid up!"

Posted by: Bozoette Mary | August 09, 2007 at 01:32 PM

Good for you. And for Noah.

Posted by: Nancy | August 09, 2007 at 01:34 PM

That's so wonderful. I'm delightedly happy for you all.

Also, so jealous of Noah's hair.

Posted by: Christine | August 09, 2007 at 01:34 PM

I just started reading your blog through a link from Plain Jane. This is great news. I have a few friends and a cousin who went through what you did and they are so glad they took the steps to make a big deal out of it. In a couple cases it was the fact that their boys' (it was always boys) mouth muscles weren't developing properly and the speech therapy worked wonders. My cousin's son is going into 2nd grade and he's already completely done with any speech therapy (which he started right around the time he was 4) and my friend's son is making leaps and bounds in the language department thanks to the therapy. I hear the on-site help is the way to go too, because they stay in a familiar environment so it's not so overwhelming. Though it will be good to get him interacting with other kids at the mock preschool so he can test out his new found skills! Congrats again... and I hope one day you have the "problem" I do -- my son won't STOP talking :-)

Posted by: Jill (CDPJ) | August 09, 2007 at 01:36 PM

Yay for you and yay for Noah! When Katie was first evaluated by ECI, her delay was only 4 months, and since she didn't have any other issues, she didn't qualify. Six months later, she was a year behind. Sigh. (Must. Stop. Beating. Myself. Up.)

But yeah, he's going to be fine. My girl was SPELLING WORDS by SOUNDING THEM OUT last night. YES! Speech therapy is miraculous!

Posted by: beth | August 09, 2007 at 01:36 PM

How wonderful! Congrats!

Posted by: MMM | August 09, 2007 at 01:37 PM

Awesome news! I'm really glad it went so well!

Posted by: Jonathon Morgan | August 09, 2007 at 01:39 PM

Yay! You're over the worst part, the simply not knowing.

Posted by: Woman with Kids | August 09, 2007 at 01:39 PM

I'm nearly weepy with happiness for you! I thought about you guys all morning and was so excited to see your post!

Won't it be a happy day when Noah asks if you'd like a coctail while you're standing in line at Trader Joes?

Posted by: Becca | August 09, 2007 at 01:45 PM

Yay!

Posted by: shy me | August 09, 2007 at 01:46 PM

You know, a lot of the time MoCo is a crappy place to live - sprawling, expensive, full of people who feel an overwhelming sense of self-righteousness (not all of them, obviously - you and me and anyone else smart enough to read this blog don't count - we're normal people). I've lived here virtually my entire friggin' life, and I tend to curse it many times a month.

This is NOT one of those times. This is one thing MoCo is excellent for. I am SO SO happy for you and the beautiful Noah that he is going to get the help that he needs.

Posted by: FishyGirl | August 09, 2007 at 01:47 PM

Hey Ames! I never, ever comment anywhere (mainly because I have this knack for saying the absolute wrong thing) but hey, there's a time for everything, eh?

Okay, the exact same thing happened when my son was 2 years old. He did about a years worth of OT and ST and now, at age 6: he will not shut up.

Good luck and don't worry.

Posted by: Becky | August 09, 2007 at 01:50 PM

You know what the real deal is, don't you? Noah's perfectly fine and those ladies just want an excuse to play with him once a week. Can't say I blame them--the kid is frikkin' adorable. :)

Posted by: Kathryn | August 09, 2007 at 01:51 PM

I actually did a fist pump when I read this post! Good work and good luck!

Posted by: Chelsea | August 09, 2007 at 01:58 PM

That's great! You are so lucky to live in a state that has such a great early intervention program. Florida is sadly lacking in these areas. What a great job that would be. Every time I read your posts about Noah's not talking I am reminded of the first book by Haven Kimmel. I can't remember the name and am too hot to Google it. Anyway...she wrote that she didn't start talking until 3 and then it was in full sentences. The way she wrote it was quite funny. One day, I am sure, you will be praying for some peace and quiet from all of the "Why's?"!!

Posted by: Nosaby | August 09, 2007 at 01:58 PM

FABULOUS news. :) I'm glad he's going to get all that specialized attention. I'm sure he'll simply blossom.

And yes, I constantly worry about under-reacting and your advice about that is something that I will definitely be taking to heart.

Let's hear it for NOAH!

Posted by: Marilyn | August 09, 2007 at 01:59 PM

So happy for you!

Posted by: Katie | August 09, 2007 at 02:00 PM

So happy for you all that I could just cry!

Posted by: Maria | August 09, 2007 at 02:03 PM

Oh, Nosaby, it's called A Girl Named Zippy and it's a fantastic, laugh out loud book!

Posted by: Katie | August 09, 2007 at 02:03 PM
MORE COMMENTS»

The comments to this entry are closed.

Advertise on amalah with FM

2007 weblog award winner: best parenting blog

BlogWithIntegrity.com align="center">

© Copyright 2003-2008 amalah dot com ALL RIGHTS RESERVED
Site design by Sean Slinsky, powered by Typepad