Diagnosis: Idiot
December 02, 2008
(Apologies in advance for the screediness of this post. I slipped in my socks and fell flat on my ass while attempting to kick a foam soccer ball into a miniature goal in my living room this morning, so perhaps it's my wounded pride [and backside] lashing out at its inner child, or some such.)
(For something more fluffy, feel free to visit the Luvs Momspeak site for my entry about Ghetto Fabulous Bargain Baby-Proofing.)
I currently find myself irrationally angry at Denis Leary.
Okay, let me back up. Denis Leary was on The Daily Show last week, where he attempted to clarify this passage from his book, from a chapter called "Autism Schmautism:"
I don't give a fuck what these crackerjack whack jobs tell you—yer kid is NOT autistic. He's just stupid. Or lazy. Or both.
HA HA! Oh, funny fucking shit, that.
So in case you missed the 284304822343489 blog entries about this, uh...yeah. KIND OF NOT THE BEST THING TO SAY. The excerpt appeared in the New York Post, parents went nuts, people got angry, the Autism Society of America essentially told Leary to go fuck himself, and as of this morning, "DENIS LEARY AUTISM" is still the very first suggestion that the Google search bar offers you when you type in his name.
But! Dudes! You totally took that out of context.
So as part of the Denis Leary Big Fucking Apology Media Blitz (aka the book ain't selling so well), he appeared on The Daily Show, where he essentially repeated a canned statement he already released. A canned statement that SURELY was thought through and would make everything better.
*breathes*
*ctrl+zees*
(Oh my God, he did NOT just pull the "but some of my best friends are autistic!" thing. He did NOT.)
("BFFs! Really! I LOVE AUTISTIC PEOPLE AND THEIR BOOK-BUYING PARENTS!")
On The Daily Show, however, Denis left out that "grown men" bit, and instead went on and on about parents. (Here's a link to the episode -- Denis appears in the last segment.) Parents are seeking low-level special needs diagnoses for their kids as some kind of get-out-of-jail-free card for their children's bad behavior. Bad behavior that is a direct result of bad parenting.
Question. What "low-level special needs diagnoses" are you NOW expertly calling bullshit on, Denis Leary? PDD-NOS? Aspergers? Sensory Integration Disorders? Because now you're shitting really close to my own lawn, dude, and I've got a really long and pointy-ass rake.
(He then reiterated AGAIN that he totally knows a family dealing with "real" autism and knows how TERRIBLE AWFUL DEATH-SENTENCE-Y this "real" autism thing is. Like seriously, worst disease EVER! A lifetime of drudgery with a non-verbal kid who bites you and hand-flaps in a corner all day. That's not really my fight to pick with him, except that I AM SO SICK of people using autism -- and a misinformed and narrow view of the spectrum at that -- as a catch-all boogeyman to strike fear in the hearts of parents everywhere. Vaccinate? AUTISM. Get an extra ultrasound? AUTISM. Use a microwave while pregnant? AUTISM. Meanwhile, I know plenty of parents who actually LIKE and ENJOY and LOVE their autistic children just fine! And their children love them back! Like they're real people or something! Imagine that!)
So, first. I get that Denis Leary is a comedian. I read the excerpt ages ago and while I thought it was dumb and misinformed and just highly ridiculously DUMB, I didn't get worked up over it. He's a comedian. He went for incendiary and controversial and frankly, he nailed it. South Park, Team America, Tropic Thunder -- three movies I laughed a lung out over; three movies that all had moments where I went, "duuude, I think they may have just gone far enough to kind of offend me." And then I went, "touche, good sirs. Tou-fucking-che."
But if you're going to backtrack on that incendiary and controversial statement when it doesn't pan out the way you wanted, when it appears that you indeed went waaaay too far, when it's hurting your sales figures and you start making the rounds of an I-Was-Taken-Out-Of-Context Media Tour, THAT'S when I'm going to take the words you say seriously.
And, second. This totally isn't about Denis Leary. This is about the last few days and weeks around here, as we attempt to navigate through Speech Delays v.2.0.
The school district -- and we live in a "good" and well-funded school district -- may provide Noah with some speech services. Services that we have already witnessed first-hand and realize that they simply won't be enough to get Noah where we think he needs to be, and where he's capable of being. There's a lowest-common-denominator aspect to the programs that hurt kids with the more mild (SOME MIGHT SAY "LOW LEVEL") delays and disabilities. Noah was always near the top of the Early Intervention scale of need. Put him in a classroom with neuro-atypical kids and other more serious disorders and he looks pretty good. He can hook himself onto the bottom rung of the ladder of "normal," and that's about as high as the free services are obligated to lift him. Which is exactly what already happened and what led to EI ending his services.
But. Put him in a classroom with neuro-typical kids and kids with zero speech or sensory issues and suddenly it doesn't look so great. He loves school, but that doesn't mean it's a perfect fit. His first progress report (we got it yesterday) was heartbreakingly abysmal. He tries hard to communicate with his teachers and peers, but no one can understand him. He still melts down over every transition. He cannot tolerate operating in the group for more than a few minutes. He needs constant one-on-one attention that the teachers cannot give. He is not demonstrating skills that I know he knows -- I looked at row after row of capital Is (for "Introduced," basically the lowest mark he can get) with a huge lump in my throat. He knows how to do that! And that! He's smart, I swear. I really swear he's a smart, loving, wonderful kid.
But he's struggling. In preschool.
And you know what, Denis Leary? If I were a bad or lazy parent, I wouldn't fucking give a shit. I wouldn't spend hours researching doctors and specialists in search of answers or therapy or a way to help my child NOT struggle in school and social situations. I would sit back and shrug my shoulders and tell myself that it will all work itself out by kindergarten. But I'd like to get my son a bigger boost up that ladder, Denis Leary, because I think he's capable of it and I believe in him and I believe it's my fucking job as his mother to get him that boost.
And you know what else, Denis Leary? You know why parents want those low-level diagnoses? It's not to ease our guilt or abdicate our responsibility for our child's "bad" behavior. It's because that's the fucking way the fucking system works, jackass. Call up your health insurance (if you've got it! ha ha!) and find out what kind of coverage they offer for, say, speech therapy.
Now find out what kind of conditions they put on it, and find out what conditions and diagnoses they exclude. Dyslexia? Articulation problems? Abnormal speech development? "Speech problems that are educational in nature?"
Now once you've asked the nice insurance rep what the fuck that even means, and well, what kind of diagnosis DOES get you the speech therapy coverage, and recieved absolutely no answer or guidance, you may realize that hell, the next phone call better be to a developmental pediatrician (appointment wait time: six months!) so hell, you can get your kid fully evaluated beyond the vague oral-motor sensory problems and get a damn solid diagnosis, and hell hot damn in a blanket, you might actually sort-of maybe secretly hope that diagnosis is enough for your incredibly expensive insurance to pay for a few measly sessions of speech therapy. (And let's not even get into occupational therapy! Ho ho!)
Meanwhile, try to look at your child -- your smart, loving, wonderful but struggling child -- and not be whalloped with fear from both sides. Fear that your insurance will reject your claims...and fear that if the insurance DOESN't reject your claims, it will be because the diagnosis your child receives will indeed be something that scares you. Something that you don't quite feel capable of handling, or something that means other people -- other misinformed, ignorant people -- will forever look at your child differently, or hold him to lower expectations, or cast pitying glances at you and wonder what you did wrong, whether you vaccinated or had ultrasounds or used a microwave while you were pregant. The boogeyman. The new scarlet letter A.
You have any best friends dealing with that, Denis Leary? Because if you do, I'm wondering why they haven't gently pulled you aside and told you -- with love! -- to please fucking cram a sock in it already.


you are absolutely right1
BRAVO.
He is a total cad, and I can't believe how completely out of line he has been.
Thank you for so clearly articulating your journey with Noah.
!*
I'm totally applauding you over here. Doubt you can hear it through the intrawebs, but it's pretty damn loud on my end.
Denis Leary jumped the snark on this one.
Fucking A, Amy!
:-)
Amen Sister!
You are preaching to the converted over here!
I do believe that was the best post I've ever read. THAT POST needs a media blitz!
I have no dog in this fight, but you articulated the whole issue perfectly, and in a way that made me understand just how fucking rotten Denis Leary's comments were. NOBODY goes through what you, and thousands of other families, go through for services and treatment just because they are looking for a 'label' or 'an excuse' for their lazy or bad parenting. You are doing right by Noah.
Dennis Leary is socially retarded. And that ain't funny. Isn't it interesting how the WHOLLY UNINFORMED feel so bizarrely comfortable spewing off definitive and sanctimonious oprinions like this. Didn't some MALE hollywood actor once poo-poo at PPD syndrome? Idiots.
Wow Amy, what you wrote there is amazing. And I kinda hope someone points Mr Leary in this direction. And then I hope he feels like a turd.
Fuck ya! I'd call him an asshole but he's already done it for me.
I like Dennis Leary, and I saw his bit on The Daily Show, but as a parent of an Asperger's kid, yeah. I wasn't terribly impressed with him in that particular moment.
Amen.
I had a developmental pediatrician tell me outright that one of the problems with the system is that the kids who could benefit the most from therapy are those who can't get it paid for because their problems are not severe enough to qualify under insurance. My son is one of those kids. (Though our insurance will allow 30 total visits in a year for any combo of speech/OT/PT.. for a co-pay and only with a covered provider, none of which are nearby.)
We're in a holding pattern right now, waiting another year to go back for a follow-up evaluation since the team was split when we went in two months ago.
Not sure what services you can pursue through the school district for right now, but we were able to get some OT for our son in ours under the broad category of "Other Developmental Delay." It's a category with a time limit, but it's getting us some services now at least.
A diagnosis of apraxia of speech (aka verbal apraxia) qualifies for speech as a medical (non-educational) for insurance. Same for Mixed Receptive-Expressive Speech disorder. But the speech provider should not use 299.x in conjunction with either of the above.
Been there too. Hang in!
Oh man. What an amazing post.
THANK YOU! I couldn't have said it any better. I was SO pissed off by his appearance on the Daily Show, I wanted to wring his neck. We've spent $16,000USD out of pocket in CANADA (free health care my ass)for Occupational Therapy for our hypotonic, still parallel playing, no one can understand him, at the time 4 year-old! That's not a fucking psychiatrist Mr. Leary and the wait time for an actual developmental evaluation, if by some miracle you can find someone who can get him on the list, was 18 months! He needed help and he needed it ASAP, so we spent from our savings and emergency funds, we put off trips, we saved where we could so he could get HELP.
I hope your insurance will cover things, but if they don't, max out your Husband's flexible spending plan for next year and remember you can write medical expenses over a certain amount off on taxes. Let's hope Obama can help us all out a bit here.
So sorry that this is all happening. We're in sorta the same place with our son. He was a preemie who remarkably has few issues. He has a bit of sensory oral motor problems and a signifigant lag when it comes to motor dexterity on his left side. He was in PT and OT but no longer qualified this past summer. He'll turn 3 in January. He's doing really well! But he still can't jump, he still can really run or do anything complex with his left hand besides hold something in place.
He looks fabulous next to the kids qualifying for EI but abysmal when next to his peers at daycare. I want to have him re-evaluated but I know he's not going to qualify and it's frightening because we all just want to do the best we can.
Sorry, I'm rambling, but I just feel like I know this place. There are wonderful services out there but I'm just afraid their out of our reach, either because of not qualifying or because we simply can't afford it.
I'm thinking about you and take faith that there are a lot of people out here that know how smart and loving and amazing Noah is.
My 20 year old brother and my 5 year old nephew (my sister's youngest son) are both autistic - at higher ends of the spectrum. Which Oh MY, still comes with a world of hurt, disappointment and challenges. Oh, and mountains of rejected insurance claims.
I used to be a fan of Denis Leary. Now? Not so much.
Well said! Especially the part about the stupid health insurance. When is this country going to wake up and see what heartless robber barons these insurance companies actually are
WOW! I had no idea this happened, but can't even believe it. Can someone PLEASE find a way for Dennis to see Amy's post? Who has the connection? I am sure he has heard from many, but this is from Amy...our Amy!
*Stands on her chair and applaudes her ass off*
Amen girl! I don't have a child that's been diagnosed with any of the things you've spoken about, but, he's struggling. He's gifted and talented level smart PER HIS TEACHERS, and he is bored out of his GD mind at school... so he is struggling. Leary is an asshat... A dirty, DIRTY Asshat
But you're still going to buy my book, right? Right?
I think this is the first time I've ever left a comment here -- it's certainly the first time I can remember -- and I really don't even have anything of value to add except to say that I'm in complete agreement. I'd missed all the media attention until I saw Leary on the Daily Show and even then I didn't really care (although the "but some of my best friends are autistic" argument did make me throw up a little in my mouth), but this post really brings it all home. Noah's situation is unfair and breaks my heart a little. Leary and others without any personal experiences with autism ("best friends" not withstanding) should keep their pieholes shut and stick with what they know instead of casting baseless aspersions.
(Unrelated note: That is the first time I've ever actually used the word "piehole" in context.)
Bravo!
Well said. I don't have any experience with autism or its relateds, but I saw that Daily Show and it really pissed me off.
Wow!
Well said.
You're doing a great job. It's incredibly difficult to navigate the insurance waters and so utterly exhausting.
Chances are very good that you can get help for your son. Denis Leary will never get help for his affliction.
Damn straight. Keep on digging that hole, Denis Leary, and soon you'll be in so deep that all of us "bad parents with lazy, stupid children" can bury you alive.
Nicely done.
You are so fucking awesome. Well done, well said.
Well fucking said.
The system is broken; health care, insurance, public schools, all of it. Nobody knows what to do about it because the problems are too big. There is no easy fix...all we CAN do as parents is attempt to navigate this system and glean the best results possible for our "low-level" kids who routinely slip through its cracks (AGGHHH - low level??) And this, Mr. Leary, is a full-time job and is NOT fun and NOT an easy way to explain away developmental/behavioral issues. This is the path of MOST resistance and Denis Leary can kiss my ass.
AAAAAAA-men!
Comedians who abuse their audience are never beloved and usually do not last. And comedians who lose face with women don't last because no man will laugh if his date is pissed. He's playing a losing game, no matter what his absurd opinions are or how he justifies them. He will be remembered for this, hated for it. Not only was this a really shitty thing to say, but it was a walloping career mistake.
Amen.
When Michael Savage made his comments this past summer, I wrote an open letter for equally clueless remarks :
http://suzannesez.blogspot.com/2008/07/open-letter-to-michael-savage-autism.html
I love how Dennis trots out 'friends' when he is called out on his incendiary comments.
He needs the same thing as Savage does-a week or two in the company of one child who IS on the spectrum.
To see that a trip to the store involves a briefing to rival the Iwo Jima invasion. That homework each night is a four hour struggle-for three pages. Or that menu planning involves the child's irrational fears of certain items.
Hah, insurance? I'm unemployed and husband is making 8 bucks an hour right now, but at least he has a job. I've wiped out the savings to buy medications. When we had insurance, they didn't cover the social skills therapy his psychiatrist strongly recommends. They didn't cover his doctor visits, either. This makes me a bad parent, right? Then explain why my 9 year old is so totally different.
Sorry, I didn't mean to rant and rave. It's bad enough that Jenny Mc Carthy raves about how she 'cured' her son's autism. No, you learned what makes your son tick. Big difference.
Amy, keep going Mama Bear on them. If you were in another county in Maryland, I'd suggest a program that starts in elementary school. It did wonders for my son and I was a stupid idiot for leaving it behind...
Yes. Just hell-fuckin-yes to everything you wrote. You have verbalized everything that I've wanted to ever since my oldest son was in kindergarten and diagnosed with ADHD. He's now 10 yrs old and has also been diagnosed (about 8 months ago) with Aspergers Syndrome.
We've gone the school district route (luckily, he qualified and they've been wonderful with a captial "W") .....and we are now looking into the insurance part of it for outside of school. We have dealt, and are still dealing with, those in our family who think that he will "outgrow it" or that he can "take something for that" (ADHD yes, and he does. Aspergers? No.) or that he's "just a boy" or that he "just needs a firmer hand" yada yada yada. This child o' mine is extremely intelligent academically....common sense and socially? Not so much. Sensory issues? Oh yeah. Anxiety? Oh yeah. Speech issues? Oh yeah. Fine motor skill issues? Oh yeah. He's seeing the speech therapist at school 2x a wk, as well as the OT...and 2x a day he does sensory training (aka, Sensory Diet).
Our youngest was evaluated by EI...and found not to qualify in regards to speech delays, or anything else for that matter. However, we've since gone the route of Parents as Teachers thru our school district and he will be evaluated again in March when he turns 3 to see if he qualifies for either of their 2 early childhood programs. As smart as he is, I believe he's definitely got sensory issues...and he's very shy...and he lines all his little cars/trucks/trains/planes up in a row and lord help you if you touch them.
Do I worry? Hell yeah.
Thanks for saying everything that I've wanted to say Amy. Your Noah is going to be just fine. You know why? Because you are his mom and you love him and want what's best for him....and you won't stop until you get it.
Well said. I concur. Best of luck with finding Noah the therapies he needs. As a mom of two boys on the spectrum, I know what you're going through. Keep fighting for your boy.
Dude is a douche.
I always felt bad with kids with low-level diagnoses. Bug never had that issue as he was so damned handicapped. But I always felt bad for parents who had to fight so hard to get the services and funding for their kids. Even with a child as disabled as Bug was it wasn't easy.
I couldn't imagine how difficult it must be for parents with kids with lesser handicaps fighting for their children's needs to be met.
Great post Amy. As usual.
While I don't have an autistic child, I can relate to a lot of the frustration. Just say "ADHD", and you'll get a lot of that "bad parent looking for an excuse" bullshit.
I'm sorry that you feel like you have to fight against the world just to get help your child. Being a mom sucks sometimes.
Amen, girlie! I've stayed away from the whole Denis Leary bit because it, and he, are totally ridiculous. But the latest round of clean up is pathetic and even worse. Thank you for covering it.
My son IS autistic, but low level/high functioning. Your son sounds like he has some of the same issues we've dealt with. One thing we did to conquer those I's on the report card was hold him back for an extra year of preschool. Even though he knows much of the academic stuff, it gives him an extra year to deal with speech and sensory issues before throwing him into the big classroom setting. PLUS, an extra year for us to continue with the MOUNDS of paperwork, insurance, school district, etc. And an extra year to have fun being a kid. And he's a great kid.
He should be required to read this.
You say you're not a bad or lazy parent because you're researching ways for other people to help your kid...maybe what your kid needs is YOU to help him with his speech? Talk to him, read him books, even read your blog to him out loud. I think that would help your kid in more ways than blaming insurance for not accepting claims for services that YOU should be doing as a parent.
Wow. Just wow. My heart hurts for you as I read this. If you have a strong enough WHY you can withstand any HOW.
Brava!
You tell him! I just don't get why seemingly intelligent people like him make such a blanket statement like that...UGH.
My son was diagnosed with a severe speech delay at 2 yrs old, right around the same time as Noah. He participated in a free program from the state of CA, where to qualify you needed a 1/3 delay in something. How they quantify 1/3 I have no idea. After 5 months he basically got kicked out because he was above age level. But you are right, had made moderate progress it would have been "enough" to stop therapy at 3 yrs old and i don't think our school district would have picked him up. the only other option would have been insurance. Check with your local colleges to see if they offer programs in speech pathology. If so, students getting their masters have to have clinical hours and many of the colleges have clinics where you can go for free therapy while the students earn their hours. At least here in CA if you ask the school district to evaluate they have to. Just keep looking for options and keep fighting for him. Noah knows you are trying to help him.
YES. Thank you.
To Amalah: Amen.
To Denis Leary: You are an asshole.
There is nothing to say but that you are awesome. And I hope that I'm just like you when I'm a mom one day.
I wish someone would kick the shit out of that asshole. I can't imagine what in the world he was thinking!
I am a "shadow" so to speak for a child with autism, he is so special and can function in most ways fine. He has a problem with fine motor skills and he ALWAYS wants everything to be the same (and in the same order) but on the other hand, he is a genius. This child is 5, he can read, write and use a computer better then most 10 year old children. He is absolutely adorable and I love him. His name is Andrew.
I wish I could just reach through the computer and give you and your family hugs.
God Bless you all.
Noah is beautiful and perfect!