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« Bouncy | Main | After the Fall »

The L Word

September 15, 2010

I felt vaguely unsettled yesterday. I made multiple stabs at writing a semi-funny story, but every attempt ended with me losing interest and idly staring into space before holding down the delete key and obliterating everything I'd written. Noah was home from school because of the primaries, so I figured I was just distracted by the constant interruptions of Mommy, Mommy, look at this Star Wars toy I made it's from Legos but I put this piece here instead of here and now it's a pod racer Mommy do you like it Mommy it's from Star Wars pew pew pew!

I finally gave up and decided that we both probably needed to go play outside for awhile.

***

Three months ago, my mom mentioned my dad's platelet count. Among probably a good five or six other things that were of concern. Ever since the roller-coaster ride of his heart surgery and multiple bouts of pneumonia, I haven't written much about my dad, I know. There was almost too much to say, what with the continued irregular heartbeat episodes, his permanently damaged lungs keeping him tethered to an oxygen machine 24/7, his diabetes, his hearing loss, the falls, macular degeneration, mysterious bruising, overwhelming fatigue, and the depression that inevitably comes when your age and body and health turn on you so dramatically, when the few simple pleasures you have left -- reading and watching baseball on TV -- are slowly slipping away behind increasingly cloudy vision. 

He only leaves the house for doctor's visits, and there are so many, and there never seems to be good news or an all-clear from any of them anymore. Something else to watch and monitor. Suspicious growths that need to be removed, minor surgery to be performed, something new to be followed up on in three months, give or take the specialist's vacation schedule.

So I didn't really think much of the platelet count thing at all. 

Instead, we all threw our energy into figuring out the house situation -- to get them into a smaller, single-level place, preferably one for seniors that would allow my mother some freedom for the first time in years, where she could feel safe leaving him for longer than it takes to make a furtive trip to Target Pharmacy for prescription refills. So the need for her own visit to her own doctor wouldn't lead to a tearful, panicked phone call because there's no one to watch your dad that day. 

This lead to cleaning and purging and sorting and donating. Then came the discovery of expensive house repairs, at just how overwhelmed they've been in their small townhouse for all this time. Then we found out about a home equity line of credit and more debt than we were expecting. They'll only get how much for the house? The top-choice communities want how much upfront? 

The next-door neighbor had a psychotic break and did WHAT out in her front yard? OMG, that would almost be funny if the whole situation weren't so terribly, horribly sad.

***

The house is going on the market on Monday. The follow-up visit for the platelet count issue was yesterday. 

The doctor took one look at the bloodwork and ordered a biopsy performed on the spot. The results were definitive. It's leukemia. 

The lab is now looking at the biopsy and we'll know the extent of the cancer by the end of the week, but his doctor was kind yet blunt: We are probably looking at something acute. The diagnosis alone means he is already officially too sick for the senior community they planned to move to. He is already saying he does not want to go through chemotherapy. 

My mom related the information over the phone last night and I sat down on the floor. I felt like I was floating. I couldn't really cry. I remembered the time she told me about his throat cancer in a Taco Bell parking lot. The time I sat on the floor in my dorm hallway five years later and she told me it had come back. The time my brother-in-law called in the middle of the night to tell me about the aneurysm. 

At some point, the calls drift together and aren't quite as distinct, even though they kept coming. A mysterious fall. A heart problem. We're at the hospital. At the ER. Headed to the doctor now. Diabetes. Skin cancer.  Heart surgery. Pneumonia. Collapsed lungs and more pneumonia. Congestive heart failure. His eyes, his ears, his lungs, his heart, again. It was always something, he was always aging, always sick. Perhaps I'd started to just expect it, and the phone calls.

But I wasn't expecting this one. I just wasn't expecting it to be this.

EPSON027  

Posted at 11:17 AM in family, fuck cancer | Permalink

Comments

I'm so sorry. If I can do anything (says the stranger on the Internet), I will gladly do it. Make a donation, send some healing Reiki energy, whatever. My sympathies to you and your family.

Posted by: Erin | September 15, 2010 at 12:28 PM

Oh. Man. Nothing else to say. One more faceless internet stalker is sending good wishes to you & your family.

Posted by: sheilah | September 15, 2010 at 12:29 PM

That sucks so bad. So so sorry that your family is going through this.

Posted by: Luba | September 15, 2010 at 12:29 PM

So many hopeful, warm thoughts to you, your family, and your dad. Fuck, indeed.

Posted by: Jen. | September 15, 2010 at 12:31 PM

I am so so sorry, Amy.

I too remember the day - it was my 5 year wedding anniversary - when my dad called and told me with a shaky voice that they found spots on his liver; undiagnosed colon cancer had spread. We didn't even know he was sick. He was 53.

I'll never forget sliding down the wall to the floor thinking "But there are presents downstairs."

I'm sure this is probably the wrong thing to say because I ALWAYS say the wrong thing, but...just know that I know what it feels like to receive devastating news about a parent. And I am so so sorry.

Love you.
L

Posted by: Lena | September 15, 2010 at 12:33 PM

So so very sorry.

Posted by: Colleen | September 15, 2010 at 12:34 PM

Thinking of you and your family.

Posted by: liz | September 15, 2010 at 12:35 PM

Thinking of you and your family.

Posted by: liz | September 15, 2010 at 12:35 PM

Amy, I'm so sorry. You are all in my prayers.

Posted by: Mommyattorney | September 15, 2010 at 12:36 PM

I'm so very sorry. May God give you peace and comfort. I'll be praying for you and your family.

The picture of you two is so sweet. I like how you are holding your arms like your Dad. : )
God bless you.

Posted by: Mary Lou | September 15, 2010 at 12:38 PM

Oh man. I am so, so sorry. Thinking about you guys and wishing you the very best.

Posted by: Sundry | September 15, 2010 at 12:38 PM

Damn, damn, damn. I am so sorry, and I don't know what else to say.

Posted by: Megan | September 15, 2010 at 12:39 PM

I'm so sorry. You and your family will be in my thoughts.

Posted by: Jessie Mae | September 15, 2010 at 12:45 PM

Sheesh. My heart just goes out to you. Such hard news. I'm so very sorry, and I hope that you and your mom can be a great support to each other and to your Dad. Hang in there, and know that we all have you on our minds.

Posted by: Julie | September 15, 2010 at 12:45 PM

I am praying, lighting a candle and sending good thoughts to your whole family.

Posted by: The Other Laura | September 15, 2010 at 12:50 PM

I am so sorry. We really need to make cancer wear lady gaga's meat dress and shove it into a lions den!

Posted by: lisa | September 15, 2010 at 12:51 PM

I am so sorry. We really need to make cancer wear lady gaga's meat dress and shove it into a lions den!

Posted by: lisa | September 15, 2010 at 12:51 PM

I am so sorry. We really need to make cancer wear lady gaga's meat dress and shove it into a lions den!

Posted by: lisa | September 15, 2010 at 12:51 PM

I'm there with my dad. I know. I'm almost past the "fuck it all" stage, but still need a bit more time. I'm feeling yours too. I'm sorry.

Posted by: Kim | September 15, 2010 at 12:52 PM

Thinking of you and your family.

Posted by: Life of a Doctor's Wife | September 15, 2010 at 12:54 PM

[no words].

Hugs and prayers, Amy!

Posted by: Jamie | September 15, 2010 at 12:56 PM

My mom was diagnosed with cancer in 2005 and died in 2006 and I still feel panicked every time the phone rings at a strange hour. There aren't words for how very much cancer sucks. I so sorry that you have to go through this.

Posted by: Kim | September 15, 2010 at 12:57 PM

My mom was diagnosed with cancer in 2005 and died in 2006 and I still feel panicked every time the phone rings at a strange hour. There aren't words for how very much cancer sucks. I so sorry that you have to go through this.

Posted by: Kim | September 15, 2010 at 12:57 PM

Oh, I'm so sorry Amy.

Posted by: MichelleH | September 15, 2010 at 12:57 PM

I'm so, so sorry, Amy. So sorry.

Posted by: Angella | September 15, 2010 at 12:58 PM

I'm so, so sorry, Amy. So sorry.

Posted by: Angella | September 15, 2010 at 12:58 PM

I almost wish you all didn't know about the leukemia. I know only what I've experienced and my family has experienced. And it's like your car is stuck on the train tracks and the doors have been welded shut and you know it's a matter of time. And not much time. The one thing I know from going through this type of hell is that love is forever.

Posted by: Jessica | September 15, 2010 at 12:59 PM

I'm so sorry, Amy. I lost a family member to leukemia a few years ago, and I've had to be a caretaker for an older family member as well, so I sort of know in a very general way how you are feeling and damn, does it suck.

Thinking of you and your mom & dad and your family and wishing the very best outcome and lots of love and peace for you all.

Posted by: gabrielle | September 15, 2010 at 12:59 PM

I'm so sorry. Hang in there.

Posted by: Kate | September 15, 2010 at 01:01 PM

I'm so sorry- I remember that floaty feeling all too well, it just sucks.

Posted by: Lizgizzy | September 15, 2010 at 01:01 PM

I am so, so sorry. You have been one of my favorite writers for years now, and it breaks my heart to know that you are going through this. My thoughts and prayers are with you.

Posted by: Wallydraigle | September 15, 2010 at 01:01 PM

I remember that horrible floaty feeling all too well. It just sucks- I'm so very sorry.

Posted by: Lizgizzy | September 15, 2010 at 01:02 PM

Oh, Amy, this news makes me very sad. That is an unreasonable amount of shit for your family to go through. Spend as much time as you can with him. I'm sure your sweet boys will help to put a smile on his face. ((hugs))

Posted by: MommiePie | September 15, 2010 at 01:04 PM

I'm so sorry. Best thoughts to you and your family. Especially your mom.

Posted by: Kim | September 15, 2010 at 01:04 PM

I am so sorry Amy. You and your family will be in my thoughts.

Posted by: Kristin | September 15, 2010 at 01:05 PM

I don't know how to comment because you don't know me, but I've been reading your blog for so long I feel like I know you. Just know that I am crying for youand your family...and praying...doing lots of praying... Lots of hugs through the internet...

Posted by: Emma | September 15, 2010 at 01:05 PM

You and your family are loved.

Posted by: KittyMarie | September 15, 2010 at 01:05 PM

I'm so very sorry to hear this. Leukemia totally sucks and I hate that y'all are going through this. We are thinking of you in San Antonio! :)

Posted by: Cora | September 15, 2010 at 01:08 PM

Adding my sorry to the list. :-(

Posted by: Miss Britt | September 15, 2010 at 01:08 PM

My heart hurts for you. Prayers and much love...

Posted by: Fawn Amber | September 15, 2010 at 01:10 PM

So very sorry to read this news.

Posted by: Mo | September 15, 2010 at 01:10 PM

OH, I'm sorry! I will keep your dad and family in my prayers. Hang in there.

Posted by: Joanne | September 15, 2010 at 01:14 PM

Oh goodness, Amy, I am so sorry. I'm thinking of you, certainly, and hoping that the doctors are able to work out the best way to take care of him. Here's hoping.

Posted by: Karishma | September 15, 2010 at 01:16 PM

Heartbreak is rarely more beautifully rendered or deeply felt than this.

Anything and everything that might pass as good luck: I wish to you & your parents.

Posted by: TwoBusy | September 15, 2010 at 01:17 PM

Thinking of you and your family, Amy.

Posted by: Tam. | September 15, 2010 at 01:18 PM

I'm so sorry Amy. Huge hugs.

Posted by: Issa | September 15, 2010 at 01:20 PM

Amy - you and your family are very much in my thoughts and prayers. I hate this for you, and I wish there were better words that could give you real peace and comfort. Know that you're not alone!

Posted by: Loren | September 15, 2010 at 01:21 PM

I'm so very sorry to hear about your dad. I lost my mom to cancer and it just sucks.

Posted by: dayna | September 15, 2010 at 01:22 PM

I'm so very sorry to hear about your dad. I lost my mom to cancer and it just sucks.

Posted by: dayna | September 15, 2010 at 01:22 PM

I'm so very sorry to hear about your dad. I lost my mom to cancer and it just sucks.

Posted by: dayna | September 15, 2010 at 01:22 PM

Your tag says it all Fuck Cancer. It takes too many people by creeping up on them. It should have to wear one of those ankle home monitoring devices so we know what shit it's up to next. I'm sorry....

Posted by: Amy in StL | September 15, 2010 at 01:22 PM

Hugs from across the country! I'm so sorry. Having been through the same thing in my own family...I know that floaty feeling and and I know how hard those calls are. I'm so sorry. Hang in there and know that even people you may hardly know are thinking of you and your family.

Posted by: Sherri | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

It's never supposed to happen to your family, to your daddy. I know how much it hurts.

Thinking of you and your family.

Posted by: Harper | September 15, 2010 at 01:23 PM

Damn it.

Posted by: lizardek | September 15, 2010 at 01:25 PM

I'm so sorry. On a lighter note, I saw this and thought of Noah:

http://www.kaboodle.com/home/omg/slideshow/pillows-to-curl-up-with?fbItemId=AAAAAQq8HP0AAAAAAOg9Ug

star wars pillows!

Posted by: Bev | September 15, 2010 at 01:25 PM

I'm so so sorry.

If your father truly decides to forgo chemotherapy/treatment for the cancer, get in touch with Hospice. (My grandmother refused treatment for lung cancer). They are a wonderful organization. Your dad may be able to stay at home if you get them involved.

Posted by: Cheryl S. | September 15, 2010 at 01:27 PM

I am so, so sorry. I'm going through a similar scenario with my mother and I continue to be amazed by how much "breaking down" a body can bear. Hang in there, we're all thinking of you and your family.

Posted by: Ginnie | September 15, 2010 at 01:28 PM

You and your family are in our prayers.

Posted by: wealhtheow | September 15, 2010 at 01:30 PM

I'm so sorry Amy. Having to parent your parents is incredibly hard on top of all the illness. Y'all will be in our thoughts and prayers.

Posted by: Ashley | September 15, 2010 at 01:33 PM

Oh Amy I wish there was something to say to make it better. I'm so sorry. It's a terrible thing I know. Lots of good thoughts coming your way.

Posted by: Diane | September 15, 2010 at 01:34 PM

I am so, so sorry.

Posted by: Lar | September 15, 2010 at 01:35 PM

Oh, Amy, I am so terribly sorry.

Posted by: Sarah | September 15, 2010 at 01:38 PM

Amy, I'm so sorry.

Posted by: Christine | September 15, 2010 at 01:38 PM

Oh, Amy, I'm so sorry. Effin' cancer! Let's go punch cancer in the junk, then meet back at your house for a bottle of wine. Or four.

Posted by: Mel | September 15, 2010 at 01:41 PM

I am so, so, ridiculously sorry.

Posted by: Mama Bub | September 15, 2010 at 01:42 PM

I am so sorry. You and your dad and your family are all in my prayers.

Posted by: Coleen | September 15, 2010 at 01:46 PM

I am so sorry. You and your dad and your family are all in my prayers.

Posted by: Coleen | September 15, 2010 at 01:46 PM

I know how it feels to receive that news and I am so, so sorry that you have to go through this. I will pray for your family, especially your dad. Hang in there.

Posted by: Katie | September 15, 2010 at 01:48 PM

I'm so sorry. This sucks! And I completely understand, agree, and applaud your "fuck cancer" category. Hang in there...

Posted by: Jodie | September 15, 2010 at 01:48 PM

I'm so sorry to hear this. Please know there's lots and lots (and lots) of us out here pulling for you and your family.

Posted by: Missy Carvin | September 15, 2010 at 01:49 PM

I'm so sorry. My heart is with you.

Posted by: tasterspoon | September 15, 2010 at 01:50 PM

I'm keeping you all in my prayers and wishes. I hope you're all getting everything you need to be able to deal with this.

Posted by: ariel | September 15, 2010 at 01:51 PM

So sorry. So completely sorry. Dads seem to be getting their asses kicked lately. Too many people I know, have been getting scary news about their dads, or losing their dads, lately. And here I sit, not even on good terms with my dad, for the past 6 months. Time to beat down some walls. I'm praying for your dad, Amalah. I'm sending all of you thoughts and best wishes for health, peace, and some good news.

Posted by: DianaCLT | September 15, 2010 at 01:55 PM

When your dad was in the hospital last year, I was visiting my dad after chemo and before radiation or maybe it was after his surgery? I can't remember. What I do remember is the incredible but sad comfort in hearing your story, in understanding and realizing I was not alone.

I'm so sorry for this latest turn. It's unfair. And sucky.

You are not alone.

Posted by: Jenna | September 15, 2010 at 01:55 PM

I know it doesn't change a damn thing, but you & your family are in my thoughts & prayers. So much love to you all.

Posted by: Amber | September 15, 2010 at 01:56 PM

I am so sorry.

Posted by: Sunshine | September 15, 2010 at 01:58 PM

I am so so sorry. Your family is in my thoughts and prayers.

Posted by: Sarah | September 15, 2010 at 02:00 PM

I'm so sorry, Amy. That really bites. I'll be praying for you and your family.

Posted by: La Rêveuse | September 15, 2010 at 02:02 PM

I am so very sorry! My thoughts are with all of you.

Posted by: Isabel | September 15, 2010 at 02:05 PM

I am so very sorry! My thoughts are with all of you.

Posted by: Isabel | September 15, 2010 at 02:05 PM

Amy I'm so sorry. I will keep him and you and your family in my prayers.

Posted by: amy2boys | September 15, 2010 at 02:05 PM

Oh Amy, I'm so sorry.

Posted by: kim | September 15, 2010 at 02:06 PM

Love to you and your family.

Posted by: Allisone | September 15, 2010 at 02:07 PM

I am so sorry about your dad. my step-grandmother is going to chimo right now.. don't know how to feel. Praying for you and your family.

Posted by: Nelia | September 15, 2010 at 02:07 PM

Wow, that sucks. I'm really sorry.

Posted by: Amy | September 15, 2010 at 02:07 PM

Much love to you and your family.

Posted by: Zak | September 15, 2010 at 02:10 PM

I'm so sorry. It's not much, but I'll pray for your family.

Posted by: Katie F | September 15, 2010 at 02:12 PM

Oh, Amy.

I'm so terribly sorry. Wishing only the best for you and your family.

Cancer can go frak itself.

Posted by: Dr. E | September 15, 2010 at 02:14 PM

I'm so sorry Amy! I can relate since we are going thru similar health issues with my dad. If it's not one thing, it's another. It's so hard to watch and hear and wonder "WHY?!"
life is sometimes just a cruel joke. hang in there....

Posted by: workout momy | September 15, 2010 at 02:18 PM

So Sorry, I'm sitting here at work trying not to cry.

Posted by: Amy | September 15, 2010 at 02:18 PM

So sorry for this latest hurdle. My dad recently had some type of episode that THEY thought was either a heart attack or light stroke. Never did come up with a good diagnosis. But this was my dad who is NEVER sick, always has more energy than he should. Now he's taking it slow and that sucks too. You and your family are in my prayers. Cherish your time with your folks.

Posted by: Lisa | September 15, 2010 at 02:22 PM
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