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« Don't Stand So Close To Me | Main | Turkey Run »

Dad

November 22, 2010

The chemo isn't working. 

I didn't expect it to. 

He felt "better" after a blood transfusion last week. His numbers were "better."

I didn't expect that to last, and it didn't. At all. 

I talked to him on the phone on his 81st birthday last week. For just a few minutes. Then he said he had to go and hung up. 

This was also expected.

He is translucent. He is blue and grey. Like a cancer-stricken extra on a medical drama, wearing too much pancake makeup. He is immobile and helpless, short-tempered and miserable. He is a bundle of medical checks and balances, with one medication causing X but preventing Y and yet none of them having any effect at all on Z.

It's happening slower than I expected. 

That's not necessarily a good thing. 

Which is confusing. Guilt-inducing. Unexpected. 

The doctors are finally talking about stopping treatment, about making decisions, about being comfortable.

Because the cancer is too aggressive, because the chemo isn't working, because he is already much older than 81 and so sick and has no bone marrow and no platelets and no hemoglobin and no options. Because he is blue and grey and miserable and fighting for one last year as the desperate months go by. 

He doesn't hear any of that. He hears fight. Chance. Odds. Win. 

He is stubborn. Obstinate. Downright impossible. 

And brave.

I would never, ever expect anything less.  

Posted at 03:18 PM in fuck cancer | Permalink

Comments

I'm sorry Amy. It's especially hard around the holidays.

Posted by: Fairly Odd Mother | November 23, 2010 at 08:25 AM

Tears and Prayers.

Posted by: Plano Mom | November 23, 2010 at 09:06 AM

I'm only one of many sending you strength and peace in this hard time. And we're just the people who live in the computer. When you feel like you are going to fall down, remember your friends, your family, your readers, your husband, your children (especially the one closest to your heart right now. Literally) are standing behind you, propping you up. Be a source of strength for your dad, and when that runs out, turn to your crew to give you strength.

Posted by: Kim S. | November 23, 2010 at 09:32 AM

God, cancer SUCKS. Took my Mom from me, my husband's father from him, just too much loss.
Just... hugs, from someone who's been there.

Posted by: Kim | November 23, 2010 at 09:54 AM

Prayers for you & your family... not sure what else to say.

Posted by: Rachel | November 23, 2010 at 10:04 AM

You are doing an amazing job, not only in trudging through all these emotions, but also for sharing them so candidly. Some might be tempted to sugar coat, or try to be politically correct but completely unrealistic. I'm sure sharing your story, the version where you are hoping for better time instead of more time, I know reading that will help others who have to face situations like this. Many thoughts of comfort for you and your family this week.

Posted by: Melissa | November 23, 2010 at 10:17 AM

This past Sunday in church, when it was time for prayer requests, a lady stood up and said your name and asked that we pray for everything that you and your family and most importantly, your father, are going through.

I just wanted to tell you, that you have friends in Baton Rouge, Louisiana and we have you in our thoughts and prayers.

Posted by: Trilby | November 23, 2010 at 10:26 AM

My heart breaks for you and your family. I can tell you this, cancer sucks, and so does chemo. Hang in there

Posted by: LindaZ | November 23, 2010 at 10:32 AM

Long time reader, first time commenter.
I'm SO SO sorry Amy. Thinking peaceful thoughts for you and your family.

Posted by: Becky (Princess Mikkimoto) | November 23, 2010 at 10:37 AM

So, so sad to hear this. If there is any comfort in the thoughts and prayers of strangers, you have that. Alot of that.

Posted by: AmyC65 | November 23, 2010 at 10:46 AM

You don't know me from Adam, but I appreciate the update. I'm sure it wasn't easy to write.

I wish there was something nice I could say that would make it better; we all do.

Posted by: Margie K | November 23, 2010 at 10:53 AM

It's never occured to me that my dad being obstinate and stubborn might turn out to have another - slightly less frustrating - side. I'm sorry you're having to go through this. I'd give you a hug but, um, personal space and all.

Posted by: Amy in StL | November 23, 2010 at 12:04 PM

I've said it before, but I am so sorry. There's nothing any of us can say that will make it any better, but I am sorry nonetheless.

Posted by: Kim T | November 23, 2010 at 12:54 PM

I'm so sorry, Amy! Sending prayers. F&@% cancer!

Posted by: Amy M. | November 23, 2010 at 01:00 PM

Wow. . . powerful writing. You have a gift to make people feel what you're feeling.

Posted by: Tressa | November 23, 2010 at 01:09 PM

so, so sorry for all of you. take care.

Posted by: Jeanne | November 23, 2010 at 01:25 PM

Words can't express how sorry I am for you and your whole family. It's horrible to have to stand by and watch. Please know that you are in my thoughts and prayers. Hugs.

Posted by: Melissa F. | November 23, 2010 at 02:31 PM

I'm hoping you respond to this.

First off, I'm terribly sorry about the situation you are in. I know the feeling of being torn between wanting to keep a loved one, and wanting them not to suffer anymore.

I was just wondering if your dad was suffering from Myelodysplastic Syndrome (MDS)? My dad was diagnosed with the blood/bone marrow cancer in 2003, and subsequently died in 2004. It is not a "very common" cancer (as was so gently put to us), but I do know of a couple of odd-ball treatments they tried on him to help increase his CBC & Platelets that I thought I might share with you if that was the case.

Posted by: Ashley | November 23, 2010 at 03:02 PM

So sorry for you and your family, Amy. I know how tough this is.

Posted by: Suzy Q | November 23, 2010 at 03:42 PM

I keep coming back here. Reading this, not knowing what to say.

I have nothing, but I'm sending you so much love.

Posted by: Christine | November 23, 2010 at 04:01 PM

I'm so sorry, Amy. Hugs.

Posted by: Angella | November 23, 2010 at 04:30 PM

So this probably isn't the best place, but I think you only keep your comments open on the current entry...

Check this out:
http://www.amazon.com/exec/obidos/ASIN/B002HMQS14/ref=nosim/theoutblush-20

Tiberius Aftershave. You know, for Bearius Care! :)

Posted by: Stephanie | November 23, 2010 at 05:44 PM

LOVE...sending lots of it your way.

Posted by: Alison F. | November 23, 2010 at 07:30 PM

I've been thinking about your dad this week. My brother-in-law also has acute leukemia (AML - is that what your dad has?) and will be getting a stem cell transplant next month - my husband is the donor.

The situations couldn't be more opposite - my brother-in-law is 41, otherwise healthy, a wife and two children under 8 at home. We are all on pins and needles as he starts yet another round of chemo. There is this feeling of unjustness in the possibility of an unfinished life. And yet, I think that unjustness applies to your dad as well.

I didn't mean to ramble. I just wish so much that your dad's leukemia would be treatable. Cancer sucks so hard. So so so hard. It seems like an awful thing to say, but I hope that your dad will find peace.

Posted by: Kate | November 23, 2010 at 07:50 PM

Because I've been where you are, I have no words, because I don't know that they're really are any. I watched my sister, at 37, fight with the same stubborn grace until the very end. I felt the same confusing mix of emotions - the desperate need for her pain to end mixed the impossible reality of what that would mean to my life. I imagine everyone does. Eventually, though, the overriding emotion was, well...love. It was the only thing left that mattered, so we all held onto it, and held each other up with it. Then we gave it all to her.

This might not really help you at all, and it's probably selfish of me to even write about myself, but I though I'd throw it out there. Please take care of yourself and know that there's a world of kind strangers thinking about you.

Posted by: olive | November 23, 2010 at 07:51 PM

Talk to him about the meaning writing has given your life, about the meaning his *work* has made to your life... about how words will sustain you and your boys and your mom and that he has given that gift to you, his daughter.

Say goodbye with your mind focused on your love for him... I know that hurts right now. But your love and smile and peace will let him know that *you* will be okay... and that's all he needs to know...

Posted by: jessica | November 23, 2010 at 08:19 PM

Amy, my heart is just breaking for you and your mom. Fuck cancer

With you dads fight, and all our prayers, I'm wishing for a miracle.

Posted by: Bettejo | November 23, 2010 at 08:44 PM

I was wondering how things were going. Big hugs to ya.

Posted by: Stephanie | November 23, 2010 at 09:01 PM

tell him we all love him

Posted by: erin | November 23, 2010 at 09:43 PM

so sorry Amy. I have 3 people in my life fighting a tough battle with cancer...I love reading your words, they express how I feel too.

Posted by: Colleen | November 23, 2010 at 09:45 PM

Dammit. That is just a ball of suck, right there. Virtual hugs your way.

Posted by: Brie | November 23, 2010 at 09:46 PM

Sending you love. May he have a good Thanksgiving with family around him...

Posted by: tracey | November 23, 2010 at 10:06 PM

Sending all of our white light, Amy.

Posted by: Dana | November 23, 2010 at 10:36 PM

I am so sorry.

Posted by: kal | November 23, 2010 at 11:02 PM

Hi Amy,

I have been where you are- with my mom. And even pregnant to boot. So bittersweet, so complex, and so fucking unfair.

Believe it or not, there will come a time when you both know that what is coming is okay. He will be okay and remarkably (and very much unexpectedly) you will be okay.

Posted by: kathryn | November 24, 2010 at 12:30 AM

I'm so sad and sorry for everyone who has lost someone special to them. Amy, I'm so sorry, and thank you for letting us know how your dad was doing. Wishing him all the best.

Posted by: Katie | November 24, 2010 at 12:50 AM

Hate this for you.

Loving thoughts to you all.

Posted by: Britt | November 24, 2010 at 02:18 AM

There is not much more I can say than, what I've said before. I'm so sorry you and your family have to go through this, Amy.

Fuck Cancer, indeed.

Posted by: Dona | November 24, 2010 at 08:33 AM

so so so sorry. It's so hard. No words. Sending love.

Posted by: amanda | November 24, 2010 at 11:41 AM

I am so sorry, Amy. What a hard thing to have to deal with, particularly when you are already a mess of hormones.

On a funnier note, I am always trying to figure out your family tree...now how many siblings do you have? Where do they live? And how old are your parents? I am guessing you were a late-in-life "surprise"? This would make an interesting post...

Again, I am so sorry.

Posted by: Kate | November 24, 2010 at 12:36 PM

Love and hugs to all of you. Shedding tears on your behalf.

Posted by: adequatemom | November 24, 2010 at 06:15 PM

Amy, I am so sorry. Please know that you are in all of our hearts and prayers. Just words, I know...but I hope all of our positive thoughts make your heart just a little warmer.
Love to you and yours.

Posted by: Cyn | November 24, 2010 at 07:36 PM

*sigh* I'm so sorry.
BIG hugs to you and your parents.

Posted by: Liana | November 24, 2010 at 09:42 PM

Amy, so sorry to hear your dad isn't doing well. He sounds like such a wonderful spirit. Cancer is such shit. I hope he feels "better" for whatever time he has left.

Posted by: cate | November 29, 2010 at 12:59 PM
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